By Laura Greenstein
Selfish. Manipulative. Untreatable. Clingy.
This is how people (even mental health
professionals) describe those who live with Borderline Personality Disorder (BPD). But considering what a person experiencing BPD deals with
daily, these labels aren’t fair.
“People with BPD are like people with third
degree burns over 90% of their bodies. Lacking emotional skin, they feel agony
at the slightest touch or movement.” That’s how BPD specialist Marsha Linehan
describes the deeply misunderstood mental health condition.
That badly burned “emotional skin” means
people living with BPD lack the ability to regulate their emotions, behaviors
and thoughts. In fact, “Dysregulation Disorder” would be a more exact, less
stigmatizing name for the condition according to NAMI’s Medical Director, Ken
Duckworth.
What Does BPD Look Like?
Like other personality disorders, BPD is a
long-term pattern of behavior that begins during adolescence or early
adulthood. But what makes BPD unique from other personality disorders is that
emotional, interpersonal, self, behavioral and cognitive dysregulation. What
does that mean?
Well, put simply: Relationships can deeply
affect a person with BPD’s self-image, behavior and ability to function. The
possibility of facing separation or rejection can lead to self-destructive
behaviors, self-harm or suicidal thinking. If they feel a lack of meaningful
relationships and support, it damages their self-image. Sometimes, they may
feel as though they do not exist at all.
When entering a new relationship, a person
experiencing BPD may demand to spend a lot of time with their partner. They
will share their most intimate details early on to quickly create a meaningful
relationship. In the beginning, they will show immense love and admiration to
their partner. But if they feel as though their lover doesn’t care enough,
give enough or appreciate them enough in
return, they will quickly switch to feelings of anger and hatred. In this space
of devaluing their partner, a person living with BPD may show extreme or
inappropriate anger, followed by intense feelings of shame and guilt. These
feelings often contribute to a self-image of being bad or evil.
Possibly because of this, individuals who live
with borderline personality disorder are among the highest risk population
for suicide (along with
anorexia nervosa, depression and bipolar disorder). Completed suicide occurs
in 10% of people with BPD and 75% of individuals with BPD have
cut, burned, hit or injured themselves. These self-destructive behaviors are
usually in response to threats of separation or rejection, but may also occur
to reaffirm the ability to feel.
Diagnosing BPD
The estimated prevalence of BPD diagnosis is 1.6%, but may be as high as 5.9%. The
number is unclear because BPD is often misdiagnosed and underdiagnosed. In
fact, one research study showed that 40% of participants with BPD were previously
misdiagnosed. We need to do better.
There are nine criteria listed in the
Diagnostic Statistic Manual (DSM-5) to determine whether someone has this
condition. A person must present with five or more of the following:
- Desperate efforts to avoid real
or imagined abandonment.
- A pattern of unstable
relationships switching between extremes of admiration and hatred.
- Unstable self-image.
- Impulsivity in at least two
areas that are potentially self-damaging (such as spending, sex, substance
abuse, reckless driving or binge-eating).
- Repeated suicidal behavior and
threats or self-harm.
- Erratic mood swings.
- Chronic feelings of emptiness.
- Intense anger or difficulty
controlling anger.
- Temporary, stress-related
paranoid ideation or dissociative symptoms.
BPD typically needs more observation than
other mental health conditions to diagnose because the symptoms are often comorbid (paired) with illnesses such as depression, anxiety,
eating disorders, post-traumatic stress disorder, substance abuse disorders and
bipolar disorder. The book Borderline Personality Disorder: The NICE Guideline on
Treatment and Management explains that the rate of comorbidity is so
high that it’s rare to see an individual with solely borderline personality
disorder.
While research hasn’t yet uncovered the exact
cause of the condition, BPD is about five times more common among first-degree biological relatives of those with the
disorder. Research also suggests that one of the major causes of the condition
is trauma. In a study trying to treat 214 women with BPD, 75% of the
participants had a documented history of childhood sexual abuse.
What Should I Do Now?
If you or someone you know was recently
diagnosed with borderline personality disorder, here are a few first steps to
take in managing this difficult condition:
Seek Treatment. Individuals who engage in treatment often show improvement
within the first year. People with BPD are often treated with a combination of
psychotherapy, peer and family support and medications.
Connect with Others. It can be incredibly helpful to have an emotional support
system of people who know what you’re going through. It’s a reminder that you
are not alone and you can recover. You can find others living
with BPD through peer-support groups or online message boards or groups. For
example, Healing From BPD includes a peer-hosted chat room.
Practice Self-Care. Part of healing is ensuring that no lifestyle choices are
worsening symptoms and preventing recovery. Practicing healthy habits such as
exercise, eating well and finding healthy ways to cope with
stress and symptoms can be a key
part of recovery. Also, it’s essential to avoid drugs and alcohol because these
substances can worsen symptoms and disturb your emotional balance.
BPD should not come with a label of
“manipulative” or “clingy.” It’s not a personality defect. It’s a serious
personality condition that needs attention and care. If you experience this
condition, keep in mind that these symptoms are not your fault. You are not
behaving or thinking in a certain way because you are a bad or evil person: You
are just a person who has a mental illness and you need support and treatment.
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